New Girl, Who Dis?
Miraculous Feelings
Desperate Times
Scary Stuff
If you’ve ever passed out before, you know how scary it can be. I’ve had the “privilege” of passing out twice before. The first time I was visiting my mom in the hospital and the orange juice and crackers I had for breakfast did not settle well in my stomach. It started with a little bit of tummy pain, then I started sweating. A nurse came in and said I looked pale, I jokingly said that’s just my normal color! I sat down in a chair and started to phase out, I didn’t even realize what had happened. I woke up to my aunt feverishly trying to get my coat off and a nurse patting down my head with a washcloth. My poor mother laying in a bed, unable to come to my rescue, had to witness this whole kerfuffle. After I vomited, I felt much better, but super tired. That was the first time.
The second time, I went to get a super minor procedure done. It was when I was trying to conceive and wanted to be sure there were no obstructions. It’s simple, you lay down, they fill you up with a liquid (down there) and take an x-ray. No problem. But as soon as the doctor said “you’re going to feel some pressure in your abdomen” the feeling came on. The heat started to rise from my toes like a dark blanket covering me. I said very clearly, “I think I’m going to pass out” and sure enough…I was awakened to nurses using smelling salts and something called a chest punch (they basically jab your sternum with their fingers). I apologized profusely, saying that I had fallen asleep and was dreaming. They called Matt to come and get me (we only had one car at the time so he ran two miles to my rescue!). Again, I vomited and then felt better but super tired the rest of the day, like I’d run a marathon.
Fast forward to that time after a car accident, after the adrenaline had worn off, and the shock began to set in, it started to happen again. We were in the kitchen and my mom was fanning me, scared because I said I couldn’t see, the tunnel vision was happening and I almost passed out again. But I came out of it.
I’ve had other close calls like this. And this morning came another one. I woke at 6 am to use the bathroom. The ache in my abdomen was throbbing, trying hard to process what little food I’ve eaten along with the chemicals. My short torso leaves me no wiggle room for pain, so the ache is pervasive and affects my whole body. Then it started. The heat rising from my toes, coming over me like a dark blanket, the sweating, the tunnel vision. I was fanning myself, praying it would pass, praying it would go away, but I was getting scared. I turned on the lights but I could barely see, like it was nighttime. If I didn’t act on this, I was going to crash on the floor. Finally I got myself up and threw myself on the hallway floor. I raised my legs up against the wall to get the blood to my head as quickly as possible. I came out of it! I came out of it!! I was so relieved! I survived this terrifying moment! There I was lying on the ground, recovering from this moment, so grateful that I came out of it! I probably fell asleep on the floor for 5-10 minutes, exhausted by the effort it took to go through that. Then I slowly made my way back to my bed and slept for another three hours!
The medical term is vasovagal syncope, and I don’t know why it happens to me. Abdominal pressure, pain, fear, low blood pressure? It’s just scary and makes everything else I do just a little bit scarier. I don’t want to cause a fuss or frighten anyone, so I worry about when it will happen again.
But for now, I will celebrate that small/big win. I lay here in bed, the worst of my days, feeling like I have the flu, weak and tired, hoping for more wins like that. I don’t want to do scary stuff, I'm tired of doing scary stuff. Hang in there Laurie, more scary stuff is headed your way.
Be Gentle
I slept in longer today, my body aching and hungry. Nothing feels worse to me than hunger because it seems like a problem I can solve…unfortunately this time I can’t. I rested on the sofa with my protein drink breakfast and had the pleasure of chatting with a friend overseas.
As I was watching Korean dramas and wishing I could eat a big bowl of ramen, this wonderful gift arrived!
A delicious soup box! (Thank you my friend!) I ate (and tasted) as much as I could, and it warmed my heart as well as my belly. I could even taste some of the rolls and cookies...what an amazing treat!
Then my heart sank...
I got the call from the thoracic surgeon's office... my surgery is scheduled for Monday, November 28th. It was a combination of hunger, weakness, and fear, I'm sure, but I cried when I got off the phone. It's settled, it'll happen. I know I should be delighted I'm one step closer to being over all of this, but it's just one more long, dark hurdle, and it scares me. The phone call just made it all the more real. My mom consoled me (and I know suffered in her own way to see me cry in fear, because I know she is scared too). So just after my final chemo treatment, I will go for another CT scan and a visit with the surgeon to look at the thymoma one more time. Then two surgeries at once…
This weakness is like wearing a shirt inside out...all of my insides are in turmoil, and my emotions are just pouring off of me without hesitation. The cells in my body are fighting back from destruction, and my heart and mind are in the emotional battle to overcome this too.
I'm trying hard to be this girl -
But as someone dear shared with me today -
“Be gentle with yourself. You have already survived 100% of your most difficult days”
Thank you I will try…
Tree of Goodness
3 and to help the sorrowing people of Jerusalem.
I will give them a crown to replace their ashes, and the oil of gladness to replace their sorrow, and clothes of praise to replace their spirit of sadness.Then they will be called Trees of Goodness, trees planted by the Lord to show his greatness.” (Isaiah 61:2-3)
Post-Infusion #4
Four Down! Two to Go!
The steroid did not allow me to sleep at all! I woke up like a zombie…nothing like going into chemotherapy already feeling half dead! I was lucky to start my day with breakfast with this wonderful man.
Then I got dressed in my special port shirt, ready to go.
Matt decided to accompany me for the day, so grateful he got to see the process of what I go through each time. We spent the time watching a movie - let’s just say watching Father Stu was a bit of a trigger, to see someone having so much faith and yet struggle through pain and suffering. I cried…
I came home to delicious pizza from Proof (thank you my friend!) and some homemade potato and white bean soup.
That Benadryl put me to sleep fast. Next thing I knew it was dark out. And I was too tired to get up and turn on the lights! Thank God for family!
When the lights were back on, I got some yogurt and granola for a light dinner (and probably my last meal). I don’t feel great, already tired and my stomach is achy. Hopefully I’ll get good sleep tonight and feel ready for a liquid diet for the next week.
Thank you for your prayers, they sustain me, and I’m so grateful.
Thinking of Me
Wrap It Up
You know you might have too many scarves when you need an organizer to keep them in order.
But hey, when you’re losing your hair, you can do anything you want!
I also celebrated having taste buds by having a delicious dinner with my stepdad! He’s wonderful company, and he loves food as much as I do - thanks for being a great date! The goal was to enjoy one more amazing meal before I can’t for a while. Now it’s preparation time, getting myself ready for my next treatment this Tuesday, starting with the steroid tomorrow morning and lots of fluids. And so begins the physical and mental fortification.
Every Season
I love the fresh, cool air of fall, the extra clothing, and the cuddling under blankets in the winter. But truthfully I love every season, for what I learn and how I grow through them. The lyrics to “Every Season” by Nichole Nordeman sum it up beautifully -
So it is with You
And how You make me new
With every season's change
And so it will be
As You are re-creating me
Summer, autumn, winter, spring
I encourage you to listen to the whole song, it’s a beautiful reminder of how we grow and change through the seasons, and I am most certainly going through a season of change in my life.
So I will enjoy these moments and the bounty of the earth through the seasons. I begin the summer with picking strawberries, then blueberries, raspberries, peas, asparagus, blackberries, peaches, cherries, and I end the fall with picking apples, and boy do I love picking apples! You know what they say…an apple a day, well, maybe it won’t cure my cancer but it’ll certainly bring me joy.
What is Looming
Caught off Guard
Seesaw
I had an appointment on Friday with my oncologist. He said my bloodwork was looking good except for my red blood count looking a little low. I explained to him that I went back to work, and he was taken aback when I explained that I am a kindergarten teacher. He proceeded to tell me that when people going through treatments ask if they can go back to work, he says it depends on the type of work. Sitting behind a computer might be fine, but being a kindergarten teacher is something completely different! Really?? You use my job as an example of what not to do?? He actually does! We had a great chuckle about it! But truly it’s remarkable. I have had an immense amount of energy these days, much more than I could’ve hoped for, considering I’m standing most of the day and repeat myself a million times to 20 tiny humans!
All of that will change next week. Another treatment is around the corner and the seesaw will flip. I will be relegated once again to the sofa, in pain, with nothing to eat. This well of energy will dry up and I will be struggle to do simple tasks again. I remind myself it’s temporary but when you’re struggling through something it’s hard. If I were stranded in the middle of the ocean, telling me I will get to land soon doesn’t make up for the sunburn, thirst, and ache for food. I see the land now that I’m at the top of the seesaw, but when I fall back down, I only have hope and faith, everything else is out of sight.
I used my boundless energy this evening to help make Back to School night a success.
I promise you, I am finding the beauty in all of this, as hard as it is. Better a handful of orchid flowers than a handful of hair I think.
You Win Some, You Lose Some
Small Wins
Tiny Humans
Just Glass
Glass Half Full
I could sit and complain about the stomach cramps, or the loss of taste and appetite and extreme hunger and weakness. I could describe the utterly exhausting fatigue with flu-like symptoms or the muscle soreness that leaves me feeling cramped in a box. The hair loss, the changed relationships, the constant worry about the future. But I’m the optimist…so let’s talk glass half full.
I have not had any nausea or vomiting!
I have not had any bone pain from the Neulasta shot!
My blood counts have remained very good for everything my body is going through!
I have not been overeating (I couldn’t even if I wanted to)!
I have been more forgiving of myself (Elsa says let it go)!
I have been more connected with friends and family!
I have had more time to read and finish some books!
And I have had more time to write!
Through writing I have been self-reflective and taken time to better understand this journey. Sure, I’m angry sometimes, and sad of course, and definitely frustrated. But I’m also happy and full of life. This is what I want, to live!
So even though I spent the past two days on the sofa recovering, wishing this garbage feeling would pass already, I want to feel the sunshine. It’s coming, I know it is.